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Antley Bixler Syndrome, The Inside Story

Antley Bixler Syndrome, The Inside Story

Breck Engel sent a quick prayer up to God. “You have to be near right now!” Doctors had just told Breck and her husband, Jacob, that their 2-week-old son, Louis, was only the 105th person to ever be diagnosed with Antley-Bixler syndrome, a rare genetic disorder. It was a rare genetic disorder that caused the bones of his face to develop differently. He would need many surgeries. They also didn’t know how long Louis was likely to live.

Breck asked, “What will happen to our child?” What is his life expectancy?

Servant Hearts with Antley-Bixler Syndrome

The year 2020 was already a difficult one for the Engles. The couple was planning to move from the United States to Asia in order to work with the church. Louis, their first born, was actually supposed to have been there.

But then the COVID-19 lockdowns came, and the Engles weren’t allowed to leave. They’d been hopeful that things would open back up—until Louis’ diagnosis. The doctors said that their son would never be able to…

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