Breck Engel sent a quick prayer up to God. “You have to be near right now!” Doctors had just told Breck and her husband, Jacob, that their 2-week-old son, Louis, was only the 105th person to ever be diagnosed with Antley-Bixler syndrome, a rare genetic disorder. It was a rare genetic disorder that caused the bones of his face to develop differently. He would need many surgeries. They also didn’t know how long Louis was likely to live.
Breck asked, “What will happen to our child?” What is his life expectancy?